How or where can we get Lorenzos Oil?
In the United States, Lorenzos oil is only available through prescription by physicians at the Kennedy Krieger Institute in Baltimore, which is studying the oil. You can contact the Institute about trial enrollment by calling +1 (443) 923-2750. Since it is not approved by the U.S. Food and Drug Administration, many insurers will not pay for it; Lorenzos oil costs upwards of $400 per month. Also, you can find out more information through the Myelin Project at www.myelin.org Why shouldnt we use Lorenzos Oil?w Lorenzos oil does have side effects. It often can lead to thrombocytopenia, a condition in which there are not enough plateletsthe cells that help blood to clot. This puts a child at risk of abnormal bleeding. Because it does not appear that Lorenzos oil is effective in treating children who have already begun to decline neurologically, it is not recommended that it be used in these patients because of the risk of the side effects.
