How many people have tuberous sclerosis complex?
At least two children born each day will have tuberous sclerosis complex. Current estimates place tuberous sclerosis complex affected births at one in 6,000. Nearly 1 million people worldwide are known to have tuberous sclerosis complex, with approximately 50,000 in the United States. There are many undiagnosed cases due to the obscurity of the disease and the mild form symptoms may take in some people. TSC is as common as ALS (Lou Gehrig’s Disease) but virtually unknown by the general population.
