How Is Marfan Syndrome Treated?
Marfan syndrome requires a treatment plan that is individualized to the patient’s needs. Some people just need regular follow-up appointments with their doctor. Others may need medications or surgery. The approach depends on the structures affected and the severity. Lifestyle issues • Follow-up. Routine follow-up is important, including cardiovascular, eye, and orthopedic exams, especially during the growing years. Your doctor will discuss the frequency of follow-up with you. • Activity. Activity guidelines vary depending on the extent of the disease and symptoms. Most people with Marfan syndrome can participate in some type of physical and/or recreational activities. Those with dilation of the aorta will be asked to avoid high intensity team sports, contact sports, and isometric exercises (such as weight lifting). Ask your cardiologist about activity guidelines for you. • Pregnancy. Genetic counseling should be performed prior to pregnancy because Marfan syndrome is an inherited condi
