How effective is the treatment for Cystic Fibrosis and how does it contribute to the life of a patient?
After you or someone you love receives a diagnosis of cystic fibrosis, you’re likely to experience many emotions, including anger, concern, guilt and fear. These issues are especially common in teens. All are normal responses. Talking openly about how you feel can help. It may also help to talk with others who are dealing with the same issues. That might mean joining a support group for parents of children with cystic fibrosis. Older children with the disorder may want to join a cystic fibrosis group to meet and talk with others who have the disease. Psychologists are often an important part of the care team as the child approaches the teen years. Support groups aren’t for everyone. But often members of these groups can share information, experiences and solutions about the unique challenges associated with cystic fibrosis. If a support group isn’t available in your area, you might consider Cystic-L, an e-mail support group for people with cystic fibrosis. Or, you may want to talk with
