How does rhabdomyoma/tuberous sclerosis affect my baby?
The affects of rhabdomyoma(s) depend on their location, number and size. If there is no issue with blocked blood flow or arrythmias (changes in the heart rate or pattern) these newborns are usually born without any symptoms of TS at birth. Tuberous sclerosis is characterized by tubers (root-like growths) that grow in various parts of the body and can affect any organ, including the brain, lungs, heart, kidneys, skin, bone, and eyes. These tubers can have a wide range in effects, which can vary from person to person within the same family. It is not yet understood why some people are severely affected while others seem to have very mild symptoms. Neurologic and skin problems are the most common symptoms and are found in up to 90 to 95 percent of TS cases. Neurologic consequences of TS are the result of tubers growing in the brain. The location, size and number of tubers are significant to outcome. The brain can be affected in different ways, depending on the location of the tubers. Neur
