How does CCO support external cancer research?
CCO is committed to supporting cancer research and the research needs of the health sector, and encourages the use of its data for bona fide research All requests by external researchers for access to CCO data must meet the requirements set out in Section 44 of the Personal Health Information Protection Act, 2004 (PHIPA). This means that the research protocol must be approved by a Research Ethics Board and supported by a confidentiality agreement entered into by the researchers. In addition to the Section 44 PHIPA requirements, CCO has data access protocols in place that must be satisfied before data are disclosed for research. For example, researchers must submit a data access request to CCO’s Data Access Committee (of which CCO’s Chief Privacy Officer is a member) and, beyond satisfying the Section 44 requirements, the research must meet CCO’s scientific standards and be consistent with CCO’s mission and objectives.
