How Do You Support Myotonic Dystrophy?
Myotonic dystrophy is an inherited disorder that can affect many systems in the body, including skeletal muscle, breathing, cardiac performance, cognitive function, and multiple other organs and systems. The symptoms of this disorder vary from individual to individual, even within the same family. This makes the disease difficult to diagnose and treat. This article shows you how you can help support research and progression toward an eventual cure. Join the Myotonic Dystrophy Foundation – Each individual or household signing up receives a ‘Family Welcome Pack’ that includes Dr. Peter Harper’s book Myotonic Dystrophy: The Facts, printed materials from the MDF Web site, a medical alert wallet card and medical history sheet, and “Cure Myotonic Dystrophy” bracelets and MDF pens. You can also ask to receive their quarterly newsletter that includes articles on myotonic dystrophy by respected authors as well as updates on the latest medical advances, progress of the MDF, and much more. Make a
