How do you explain Aicardi Syndrome to small children?
When children ask what’s wrong with Annie, we typically explain that Annie was born with some parts of her brain missing—that Annie is missing the part of her brain that tells her legs to walk, and she’s missing the part of her brain that makes her talk, etc. But we also like to emphasize that Annie does still have the parts of her brain that make her smile and giggle, etc. We typically explain seizures to small children as hiccups that are in her brain. We also like to emphasize what Annie has in common with a particular child, such as enjoying a certain TV show, swimming, or playing computer games.
