How do the ED syndromes affect someones daily life?
Emotionally, the ED syndromes can be challenging for affected individuals. One of the purposes of the National Foundation for Ectodermal Dysplasias is to reach out to individuals and families affected by ED syndromes and help them live full, productive lives. There are thousands of successful, well-adjusted, contented people living with this disorder. The emotional pain of ectodermal dysplasia can be overcome with one’s own inner resources, sound medical facts, and the support of others. Sometimes professional counseling is needed to develop self-confidence and positive self-image.
