How do CAHPS surveys address informed consent and patient privacy issues?
The CAHPS surveys and support materials are designed to meet standards of informed consent and patient privacy consistent with institutional review board policies. Recommendations for recruitment, survey cover letters, and surveys provide the necessary and required information for participants to give informed consent. This information includes: • The sponsorship and goals of the research; • The benefits and risks of participation; • An estimate of the time it will take to complete the survey; • The names of all organizations who will have access to data or information that participants provide; • An assurance of confidentiality; • The name of a contact person; and • Information on how long direct identifiers will be retained. These requirements apply specifically to the use of CAHPS surveys for research purposes. However, AHRQs CAHPS Consortium expects all survey sponsors and vendors to adhere to high standards of privacy and confidentiality protection when conducting CAHPS surveys an
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