How can RRP patients and their families get in touch with one another?
Families and patients who are already isolated by the physically debilitating nature of RRP are sometimes marginalized within their own communities. It is essential that people who have been touched by this cruel disease find strategies that build a sense of empowerment/self-esteem and neutralize the sense of isolation. RRP ISA has several message boards in its archives and we also encourage patients and professionals to join the RRP Support Tribe. This is a powerful interactive environment through which patients, families and health care professionals may communicate with one another.
