How can people help advance PCD science, research, and support?
There is a great deal of work to do in PCD research, education and awareness and every member of the PCD community has a valuable contribution to make. We need a strong patient advocacy group to lead the charge and dedicated volunteers in the community to spread the message. There are many ways you can help. Here are some ideas: 1. Make a donation. Your dollars go directly to support PCD research, education and advocacy efforts. 2. Participate in clinical trials and other research endeavors when you can. We have small numbers and every single person with PCD is a critical piece of the research puzzle. 3. Volunteer in your community. Fundraising is only one way you can establish a presence for PCD in your community. Consider talking to local hospitals, nursing/medical schools or media about PCD. If you want help with what to say, give the PCDF a call. Go to top PLEASE NOTE: The information contained on this site does not constitute medical advice and the PCDF cannot respond to questions
