How can I volunteer to participate in Foundation research projects?
The Foundation Fighting Blindness maintains a computerized National Registry to identify and collect medical and family histories of people in the U.S. with retinal degenerative diseases. Participants who complete a Registry questionnaire may also give permission to The Foundation to release their names to researchers for Foundationapproved studies. Many of the patients who will participate in future clinical studies will be identified in this way. A Registry form is included with this packet. In addition, patients seen regularly at a Research Center may be included in certain clinical studies at that Center.
