How can I have my hypocretin levels measured?
Hypocretin-1 (but not 2) can be measured in the cerebrospinal fluid (CSF) but not in the blood or in any other peripheral tissue. A lumbar puncture is required to collect CSF. Most patients with narcolepsy-cataplexy have no hypocretin-1 molecules in their CSF. If you are interested in having your CSF hypocretin levels measured, please contact Mali Einen at the Center for Narcolepsy.