How can I find out what studies are participating in the NGC and contributing clinical data and biomaterials to the NCGS?
A12. This information can be found at the NCGS website, which is maintained at Washington University (http://zork.wustl.edu/). Click on the NIDA icon, select public information, and then click on study information. Q13. The CTN uses nested informed consents in which research participants agreed to different levels of access to data stored at the NCGS. Is this true and how does this affect access to data stored at the NCGS? A13. NIDA and the NCGS must abide by and implement the wishes of research participants as indicated in their nested informed consents. These nested consent forms vary from study to study, but typically include three levels of consent. These levels of consent may restrict access to data to the scope of the original study, to addiction and related medical disorders, or to any genetics study. NIDA will provide the access status of the samples on the NCGS website (http://zork.wustl.edu/).
Related Questions
- I am a member of the NGC and have contributed data to the NCGS. Do I need to submit a NIDA Genetic Data Access Request to receive my own clinical data and biomaterials?
- How can I find out what studies are participating in the NGC and contributing clinical data and biomaterials to the NCGS?
- When must the Recipient destroy Biomaterials, Clinical Data, and Genetic Analysis Data received from the NCGS?
