Have you heard if pamidronate might aggravate hearing problems by thickening the small bones in the ear?
There is work at NIH to see if hearing is affected for better or worse by pamidronate. Q: Is there a way we could get information on the NIH study about pamidronate’s effect on hearing? A: Not until they have analyzed the data. Q: Can hearing loss be cured or somewhat corrected? A: Hearing loss can be treated with hearing aids and surgery depending on the type and severity of the loss. There is no preventative to take yet. Q: My nine-year-old grandson, who has OI, complains that the T.V., radio or someone yelling hurts his ears. Will loud noises “break” the bones in our ears? A: Only extremely loud noises, such as jet airplanes and bombs, would have enough energy to damage the ossicles in someone with OI. I know only of a few reported incidences like that. Most of the time, the reasons to avoid loud noises are the same for everyone – loud noises cause inner ear damage and can lead to hearing loss. Q: Can a hearing test determine if my loss is due to OI or loud noises, such as music and
