Does having SWS mean there will be brain damage?
A classical diagnosis of Sturge-Weber Syndrome includes brain involvement. However, the degree to which the brain is “damaged”, if at all, varies from one individual to another. Many people have blood vessel abnormalities in the brain without seizures, retardation, or any obvious impact. If a stroke occurs, will the damage result in permanent disability? Some children with stroke-like episodes eventually develop permanent weakness, but most regain use of the limb within 72 hours of the onset of weakness. Most of the episodes occur at the time of seizures and treatment is directed toward the associated seizures. If you detect what appears to be the sudden onset of weakness in an arm and hand, leg, or face, seek immediate medical attention.
