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Does anyone know anything about LCPD or Legg Calve Perthes Disease?

calve disease legg perthes
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Does anyone know anything about LCPD or Legg Calve Perthes Disease?

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We were told my 3 year old grandson has it almost a year ago and that his bone to his hip is completely dead and all we could do was watch him and do x-rays to watch for changes. 2 weeks ago after the x-rays he told us to cut his activities back and give him Motrin 2 to 3 times a day. No jumping, climbing,kicking, sliding or any kind of playground activities.This will be for years. He said this is the beginning of the critical time for him. I know this disease is rare and I just wonder if there are many people out there with kids this young and how do you deal with with slowing them down. We have adopted him and he is a little 100% boy always climbing and running and it is so hard to get him to slow down. He does not understand that it will hurt him. If anyone knows anything about this disease I would like to hear from you. Thank You..

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