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Does anyone know anybody with Dandy Walker Syndrome? And how does it affect them on a daily basis?

April 26, 2017affect basis dandy walker syndrome

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Does anyone know anybody with Dandy Walker Syndrome? And how does it affect them on a daily basis?

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My daughter was born with Dandy Walker Syndrome. I had never heard of it until she was diagnosed. She had developmental delays and seizures. She passed away in 2006 due to a seizure. She was 9yrs old.