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Does anyone have any information about Dents disease (aka X-linked recessive nephrolithiasis)?

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Does anyone have any information about Dents disease (aka X-linked recessive nephrolithiasis)?

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My son (age 5) has been diagnosed with this. I have researched this extensively, but I would like to find someone with first hand information. It is a very rare genetic disorder of the renal tubules. If anyone has every known of anyone with this disease I am very interested in the prognosis. Most research is very vague regarding the end result of this condition.

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