Do PWPSP get seizures? How and when do they occur and how can the caregiver treat seizures?
Some, but by no means all, PWPSP have experienced seizures. Here are some examples: My husband was hospitalized with a seizure-like episode which was new to us. He was having what is technically called myoclonus. All of his trunk muscles were twitching (firing) and his arms were jerking and his jaw and head. His temperature was elevated and when it subsided or during the course of it he broke out in a sweat and was drenched. The best hypothesis was that he was retaining urine (temporarily) which triggered an autonomic storm (the twitching) and when it subsided or “broke” he began to sweat and cool down. The body’s thermostat is in the area of the brain damaged by PSP and bladder issues/urinary retention can trigger autonomic nervous system storms, so that was our best guess at what was going on. It has happened twice since, but we just stuck it out at home. It has always occurred at the twilight time of day and our solution has been to be very sure he gets a minimum of 2000 cc of fluid
