Can someone give me straight forward info on pulmonary fibrosis?
I have pulmonary fibrosis and I am sorry to say the prognosis is not good. Your mom is fatigued because she is getting an inadequate flow of oxygen to her organs and tissues. It may be that her lungs are severely damaged at this point. The scarring has left little functioning lung tissue and that limited amount of tissue is what controls the amount of oxygen she gets to her body. There are things she can do. First, and most importantly, she needs to get into pulmonary rehabilitation as soon as possible. They will teach her how to breathe using the lung tissue she has left. She will be more effective (after rehab) at breathing, and her organs and tissues will benefit from this improved technique. If she gets pulmonary rehab, she will feel better, and then feel like getting up and moving around. The more ambulatory she remains, the longer she is going to live. I hate to paint a bleak picture for you, but there is no cure for this disease, and most of us live 3 to 5 years after the initia
