Can counselling help?
This service will be an ongoing requirement possibly through the life of the individual as he attempts to adjust to decreasing vision. Centres where Usher syndrome is understood and where they can meet others similarly affected to talk out their difficulties, need to be planned. For an individual with Usher syndrome, the knowledge that he is not the only one with his condition, that he can meet someone in the same situation, that he is ‘understood’ and does not have to ‘keep up a front’, is invaluable. Supports such as these are provided through Sense (UK) and through the Retina International Youth group.
