At what point do I need to consider calling a professional patient and parent advocate?
The time to call in a “professional patient and parent advocate” is when you either want to enlist help “early in the process” when a major medical illness is diagnosed and you are making every effort to obtain rapid information on the illness, seek out options for best care, and to learn all you can about the illness and its near term and long term implications. In addition, if you are not 100% sure if the recommendations you are receiving are necessarily the best and most cutting edge, you may want to seek out highly respected medical experts or centers of excellence that a professional patient and parent advocate will have inside information about. Once a serious medical diagnosis has been made, it often pays to get a “second opinion” and this may be helped along by a patient and parent advocate who can easily use their contacts, the Internet, connections and past experience with known super experts. If you are without family, or family members are living far away or out of state, a
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