Are there drug treatments for periodic paralysis or the myotonias?
There are no FDA approved treatments for periodic paralysis or the myotonias. Any medications currently prescribed for these disorders are used “off-label”. “Off-label” means the drug is approved to treat another condition/disease, but was not scrutinized under the quality control protection of the FDA’s clinical trials process for treatment of myotonias or periodic paralysis. CINCH (Consortium for Clinical Investigation of Neurological Channelopathies) is currently carrying out a number of trials to test treatments for these disorders. CINCH is a member of the National Institute of Health’s Rare Diseases Clinical Research Network (RDCN), which was set up to address the lack of approved treatments for rare disorders, including the channelopathies. To learn more about current CINCH trials click on the following link. “Learn about current research studies”.
