Are there any other programs available to help pay for PKU treatment costs?
Yes. BPPS can refer patients to the National Organization for Rare Disorders (NORD), an organization that specializes in this type of assistance for patients with rare diseases. NORD has set up a fund that provides premium and co-payment assistance for patients receiving prescription medication for PKU, as well as assistance with costs directly related to PKU treatment. For an overview of NORD, click here. For more FAQs about NORD, click here.