Are there any children with Hydranencephaly who are on ventilators? What is their quality of life?
Yes, again, there are a few children who have been on a ventilator or bipap for several years and in 2 of the cases at least, the children have never been as healthy or happy as they are now on the ventilator. Having the ventilator help with breathing gives the child more energy to interact with others. And, many of the children on ventilators arent on them full time.
