Are the Mailing List Discussions indicative of the normal treatment routines people see?
[Section Updated: 2/97] Most likely they are not. People who are flying through the treatment without problems don’t have much need to expend time and energy to find out more about something that is working for them. Likely the list gets weighted towards the side of the problems and concerns. People turn here for an education and for comfort and solace when things are not going well. This is much like Usenet groups or mailing lists dealing in specific issues, for example, PC video cards. Most of us don’t read such a group unless we are having problems or intend to go make a purchase of a new part for our computer. Very roughly stated, the mailing list had about 158 members in January of 1997, and estimates of over 5000 people are participating in the IRB/FDA study for the US alone, so the list represents about 3% of USA EPD patients (also note that not all list members are actually USA patients). Certainly, worldwide, the mailing list is statistically insignificant for reporting treatm
