How does the APSU work?
Each month ~ 1350 clinicians on the APSU contact database are sent either a reply-paid report card or an e-mail ‘card’ listing conditions currently being studied through the APSU. Clinicians are asked to report children newly diagnosed with any of the conditions listed. Investigators conducting a study are informed weekly of new cases reported by APSU contributors. The Investigator then sends a brief questionnaire to the clinician requesting further de-identified information. Investigators are responsible for collation, analysis and publication of this data (Figure 1), and report study findings annually through the APSU.
