Is the information confidential?
All information collected from the mother in connection with donation and all test results are kept confidential, in a locked file room and in a secure computer database with no link outside the NYBC. To protect the privacy of the family, the identity of the mother and baby are kept temporarily in NCBP’s records (until after results of the infectious and genetic disease tests are reported). Health authorities, however, require a link to the donor for possible public health reasons. We, therefore, maintain long-term linkage to the donor through the mother’s and baby’s hospital records.
